It's been a little bit of a bumpy road the last bit. There are days where I feel somewhat okay. Well enough to at least go to the store or to a movie, and others (which are more frequent) where it is all I can do to just get out of bed. The pain in my ribs gets so bad. If that weren't enough, I've been having terrible migraines in the back of my head. My right arm is still giving me trouble. Most days it's so weak, I can barely hold a plate in that hand. If I'm honest, it terrifies me. I don't know what that means. Is the neuropathy spreading? Is something else going on? My head just spins. My doctor ended physical therapy even though I'm still using my walker. I go swimming twice a month as my physical therapy. It feels so nice to be in the water and not feel the pressure of pain. But I can only handle it for about an hour and then I've completely exhausted myself. Thank you friends who have taken me swimming by the way...
Sapho Syndrome, Neuropathy, Chronic Regional Pain Syndrome, Undiagnosed rare disease, Polycystic Kidney Disease, and Staph Infections. So far it's been 11 years living with a chronic illness. Failed treatments and changes in name of what disease I really have. Recently, my whole life has changed dramatically even more so, due to this illness. I hope to update and share a positive light on this crippling disease.