People mean well with the words they say or the actions they do when dealing with someone who has a chronic illness and pain. I don’t believe anyone intentionally means the following remarks to be hurtful or annoying, or just ignorant. However, to really try and understand how chronic pain works on a day to day basis then continue reading. It’s to give people a better understanding of what is helpful and what is not. Don’t be offended if you’ve done some of these things either. Don’t be offended by my sarcastic remarks either. I just want you to be aware. I’ve studied around on lists other people have made about chronic pain and what is helpful and what isn’t. It wasn’t surprising when I found that my list was the same or very similar as others who deal with chronic pain. - You don’t look sick- Just because I don’t look sick doesn’t mean that I’m not. Some days there is a litt...
Sapho Syndrome, Neuropathy, Chronic Regional Pain Syndrome, Undiagnosed rare disease, Polycystic Kidney Disease, and Staph Infections. So far it's been 11 years living with a chronic illness. Failed treatments and changes in name of what disease I really have. Recently, my whole life has changed dramatically even more so, due to this illness. I hope to update and share a positive light on this crippling disease.