People mean well with the words they say or the actions they do when dealing with someone who has a chronic illness and pain. I don’t believe anyone intentionally means the following remarks to be hurtful or annoying, or just ignorant. However, to really try and understand how chronic pain works on a day to day basis then continue reading. It’s to give people a better understanding of what is helpful and what is not. Don’t be offended if you’ve done some of these things either. Don’t be offended by my sarcastic remarks either. I just want you to be aware. I’ve studied around on lists other people have made about chronic pain and what is helpful and what isn’t. It wasn’t surprising when I found that my list was the same or very similar as others who deal with chronic pain. - You don’t look sick- Just because I don’t look sick doesn’t mean that I’m not. Some days there is a little more energy to put time and effort into getting ready for the day. With chronic pain
Sapho Syndrome, Neuropathy, Chronic Regional Pain Syndrome, Undiagnosed rare disease, Polycystic Kidney Disease, and Staph Infections. So far it's been 11 years living with a chronic illness. Failed treatments and changes in name of what disease I really have. Recently, my whole life has changed dramatically even more so, due to this illness. I hope to update and share a positive light on this crippling disease.